{"id":3318,"date":"2023-11-30T15:49:09","date_gmt":"2023-11-30T15:49:09","guid":{"rendered":"https:\/\/riberasalud.com\/rsc\/?p=3318"},"modified":"2023-11-30T15:49:18","modified_gmt":"2023-11-30T15:49:18","slug":"el-hospital-universitario-del-vinalopo-firma-un-convenio-para-ayudar-a-pacientes-con-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/riberasalud.com\/rsc\/2023\/11\/30\/el-hospital-universitario-del-vinalopo-firma-un-convenio-para-ayudar-a-pacientes-con-enfermedades-raras\/","title":{"rendered":"El Hospital Universitario del Vinalop\u00f3 firma un convenio para ayudar a pacientes con enfermedades raras"},"content":{"rendered":"\n<ul class=\"wp-block-list\"><li>El convenio de colaboraci\u00f3n entre la asociaci\u00f3n AER-ELX y el departamento de salud garantiza la cooperaci\u00f3n e inclusi\u00f3n de las personas con enfermedades raras y\/o sin diagn\u00f3stico<\/li><li>Profesionales del Departamento de Salud del Vinalop\u00f3 participar\u00e1n en el I Congreso de Enfermedades Raras de Elche el 13 y 14 de diciembre en el Auditorio Centro de Congresos<\/li><\/ul>\n\n\n\n<p>El\u00a0<a href=\"https:\/\/www.vinaloposalud.com\/\">Hospital Universitario del Vinalop\u00f3<\/a>, del grupo sanitario\u00a0<a href=\"https:\/\/www.riberasalud.com\/\">Ribera<\/a>, ha firmado un acuerdo de colaboraci\u00f3n con la Asociaci\u00f3n de Enfermedades\u00a0 Raras Elche \u201cAER-ELX\u201d con el objetivo principal de trabajar y cooperar en la inclusi\u00f3n de las personas con enfermedades raras y\/o sin diagn\u00f3stico.<\/p>\n\n\n\n<p>El convenio recoge la realizaci\u00f3n de visitas y charlas informativas por parte de profesionales para la puesta en marcha de acciones de difusi\u00f3n en los centros educativos con enfermeros de bajo prevalencia con el fin de concienciar y sensibilizar a los equipos docentes del d\u00eda a d\u00eda de esa enfermedad en cuesti\u00f3n. Adem\u00e1s, se trabajar\u00e1 en la puesta en marcha de \u201ccanal acceso\u201d para asignaci\u00f3n de referente m\u00e9dico por parte del Hospital Universitario del Vinalop\u00f3 para pacientes con enfermedades raras.<\/p>\n\n\n\n<p>Gracias a esta colaboraci\u00f3n, profesionales del Departamento de Salud del Vinalop\u00f3 tendr\u00e1n una alta participaci\u00f3n dentro del I Congreso de Enfermedades Raras de Elche que tendr\u00e1 lugar los d\u00edas 13 y 14 de diciembre en el Auditorio Centro de Congresos \u201cCiutat d\u2019Elx\u201d.<\/p>\n\n\n\n<p>Las ponencias est\u00e1n enfocadas a la formaci\u00f3n de docentes y sanitarios con el fin de alcanzar una sociedad m\u00e1s inclusiva y justa. La clave ser\u00e1 mejorar la empat\u00eda social a trav\u00e9s del conocimiento y la informaci\u00f3n a trav\u00e9s del lema \u201cJuntos Sumaremos\u201d.<\/p>\n\n\n\n<p>Rafael Carrasco, Director Gerente del Departamento de Salud del Vinalop\u00f3, destaca que \u201clos pacientes son de gran importancia para Ribera por lo que buscamos acompa\u00f1arlos tras un diagn\u00f3stico dif\u00edcil. Nuestro compromiso es avanzar en investigaci\u00f3n\u201d.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>El convenio de colaboraci\u00f3n entre la asociaci\u00f3n AER-ELX y el departamento de salud garantiza la cooperaci\u00f3n e inclusi\u00f3n de las personas con enfermedades raras y\/o sin diagn\u00f3stico Profesionales del Departamento de Salud del Vinalop\u00f3 participar\u00e1n en el I Congreso de Enfermedades Raras de Elche el 13 y 14 de diciembre en el Auditorio Centro de &#8230; <a title=\"El Hospital Universitario del Vinalop\u00f3 firma un convenio para ayudar a pacientes con enfermedades raras\" class=\"read-more\" href=\"https:\/\/riberasalud.com\/rsc\/2023\/11\/30\/el-hospital-universitario-del-vinalopo-firma-un-convenio-para-ayudar-a-pacientes-con-enfermedades-raras\/\" aria-label=\"Leer m\u00e1s sobre El Hospital Universitario del Vinalop\u00f3 firma un convenio para ayudar a pacientes con enfermedades raras\">Leer m\u00e1s<\/a><\/p>\n","protected":false},"author":2,"featured_media":3319,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_editorskit_title_hidden":false,"_editorskit_reading_time":1,"_editorskit_is_block_options_detached":false,"_editorskit_block_options_position":"{}","_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","_uag_custom_page_level_css":"","advgb_blocks_editor_width":"","advgb_blocks_columns_visual_guide":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[207],"tags":[59,246,39,395],"class_list":["post-3318","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-alianzas-con-el-entorno","tag-colaboracion","tag-convenio","tag-enfermedades-raras","tag-inclusion"],"featured_image_urls_v2":{"full":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR.jpg",800,533,false],"thumbnail":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR-150x150.jpg",150,150,true],"medium":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR-300x200.jpg",300,200,true],"medium_large":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR-768x512.jpg",768,512,true],"large":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR.jpg",800,533,false],"xl":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR.jpg",800,533,false],"xxl":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR.jpg",800,533,false],"xxxl":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR.jpg",800,533,false],"xxxxl":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR.jpg",800,533,false],"xxxxxl":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR.jpg",800,533,false],"1536x1536":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR.jpg",800,533,false],"2048x2048":["https:\/\/riberasalud.com\/rsc\/wp-content\/uploads\/2023\/11\/Convenio-EERR.jpg",800,533,false]},"post_excerpt_stackable_v2":"<p>El convenio de colaboraci\u00f3n entre la asociaci\u00f3n AER-ELX y el departamento de salud garantiza la cooperaci\u00f3n e inclusi\u00f3n de las personas con enfermedades raras y\/o sin diagn\u00f3sticoProfesionales del Departamento de Salud del Vinalop\u00f3 participar\u00e1n en el I Congreso de Enfermedades Raras de Elche el 13 y 14 de diciembre en el Auditorio Centro de Congresos El\u00a0Hospital Universitario del Vinalop\u00f3, del grupo sanitario\u00a0Ribera, ha firmado un acuerdo de colaboraci\u00f3n con la Asociaci\u00f3n de Enfermedades\u00a0 Raras Elche \u201cAER-ELX\u201d con el objetivo principal de trabajar y cooperar en la inclusi\u00f3n de las personas con enfermedades raras y\/o sin diagn\u00f3stico. El convenio recoge la&hellip;<\/p>\n","category_list_v2":"<a href=\"https:\/\/riberasalud.com\/rsc\/category\/alianzas-con-el-entorno\/\" rel=\"category tag\">Alianzas con el entorno<\/a>","author_info_v2":{"name":"Mar Sanchez","url":"https:\/\/riberasalud.com\/rsc\/author\/msotoriberasalud-es\/"},"comments_num_v2":"0 comentarios","yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>El Hospital Universitario del Vinalop\u00f3 firma un convenio para ayudar a pacientes con enfermedades raras - RSC Grupo sanitario Ribera<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/riberasalud.com\/rsc\/2023\/11\/30\/el-hospital-universitario-del-vinalopo-firma-un-convenio-para-ayudar-a-pacientes-con-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El Hospital Universitario del Vinalop\u00f3 firma un convenio para ayudar a pacientes con enfermedades raras - RSC Grupo sanitario Ribera\" \/>\n<meta property=\"og:description\" content=\"El convenio de colaboraci\u00f3n entre la asociaci\u00f3n AER-ELX y el departamento de salud garantiza la cooperaci\u00f3n e inclusi\u00f3n de las personas con enfermedades raras y\/o sin diagn\u00f3stico Profesionales del Departamento de Salud del Vinalop\u00f3 participar\u00e1n en el I Congreso de Enfermedades Raras de Elche el 13 y 14 de diciembre en el Auditorio Centro de ... 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