{"id":1729,"date":"2020-02-21T22:00:33","date_gmt":"2020-02-21T21:00:33","guid":{"rendered":"https:\/\/www.hospitaldemolina.es\/?p=1729"},"modified":"2023-10-25T06:34:22","modified_gmt":"2023-10-25T06:34:22","slug":"21-de-febrero-vi-jornada-regional-de-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/riberasalud.com\/hospital-de-molina\/21-de-febrero-vi-jornada-regional-de-enfermedades-raras\/","title":{"rendered":"VI Jornada Regional de Enfermedades Raras"},"content":{"rendered":"\n
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La C\u00e1tedra de Investigaci\u00f3n Hospital\nde Molina de la UCAM<\/strong> ha presentado \u2013 en el marco de la VI Jornada\nRegional de Enfermedades Raras<\/strong>, celebrada hoy viernes 21 de febrero – los\navances realizados en los estudios que est\u00e1 desarrollando sobre \u201cTermograf\u00eda en\nel diagn\u00f3stico de Enfermedades Raras. Avances en la investigaci\u00f3n del aparato\nlocomotor en el S\u00edndrome de Dreyfuss\u201d y \u201cSoluciones quir\u00fargicas ante patolog\u00edas\ndel aparato locomotor en la mano en Enfermedades Raras\u201d.<\/p>\n\n\n\n

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As\u00ed, Andr\u00e9s\nMart\u00ednez-Almagro (Catedr\u00e1tico de Anatom\u00eda de la UCAM) y Alessio Cabizosu (investigador\nde la C\u00e1tedra de Investigaci\u00f3n Hospital de Molina de la UCAM), han presentado\nlos avances en el estudio de la termograf\u00eda como herramienta de diagn\u00f3stico y\nevaluaci\u00f3n de la distrofia muscular de Emery-Dreifuss: \u201cLa t\u00e9cnica termogr\u00e1fica\nse basa en la medici\u00f3n y cuantificaci\u00f3n de la temperatura de la superficie\ncorporal y puede convertirse en una novedosa herramienta de diagn\u00f3stico, al\npresentar numerosas ventajas, como la inmediatez de resultados o la no\ninvasividad. Concretamente, al aplicarla a la distrofia muscular Emery-Dreifuss\n– un tipo de distrofia que afecta principalmente al m\u00fasculo esquel\u00e9tico y\ncard\u00edaco -, hemos encontrado diferencias de temperaturas dependiendo de la fase\nevolutiva de la enfermedad en relaci\u00f3n con los par\u00e1metros edad \u2013 \u00edndice de masa\ncorporal\u201d. <\/p>\n\n\n\n

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Por su\nparte, el adjunto a la Unidad de Miembro Superior del Hospital de Molina y\nespecialista en miembro superior, Pedro S\u00e1nchez Angulo, ha explicado que las\nafecciones que se manifiestan en las manos en las llamadas enfermedades raras\nson muy diversas. Dependiendo del tipo de enfermedad y a qu\u00e9 elementos afecta\n(col\u00e1geno, fibras musculares, estructura \u00f3sea, etc.), el tratamiento de cada\nuna de ellas es diferente y siempre adaptado a cada caso individual, en funci\u00f3n\nde la patolog\u00eda y las expectativas del paciente para su d\u00eda a d\u00eda, en aras de\nmejorar su calidad de vida: \u201cEl tratamiento de estas afecciones suele ir\nencaminado a mejorar la funcionalidad de la mano y tenemos como herramientas\nm\u00e1s destacadas el uso de las artrodesis articulares, transferencias tendinosas,\nartroplastias con o sin pr\u00f3tesis, liberaciones nerviosas y a veces una\ncombinaci\u00f3n de varias t\u00e9cnicas en funci\u00f3n de la patolog\u00eda y las deformidades a\ntratar. Es por tanto, un reto para el equipo de cirug\u00eda de mano ya que no s\u00f3lo\ntratamos de solventar la deformidad anat\u00f3mica, sino de adaptar los cambios que\nvamos a realizar en la cirug\u00eda a las expectativas de los pacientes\u201d.<\/p>\n\n\n\n

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La VI\nJornada Regional de Enfermedades Raras<\/strong>, ha sido inaugurada por el\nConsejero de Salud de la Regi\u00f3n de Murcia, Manuel Villegas Garc\u00eda, la Alcaldesa\nde Molina de Segura, Esther Clavero Mira, el Concejal de Deporte y Salud del\nAyuntamiento molinense, Miguel \u00c1ngel Cantero Garc\u00eda, el Presidente de FEDER y\nFundaci\u00f3n FEDER, Juan Carri\u00f3n Tudela, y el Gerente del Hospital de Molina,\nPedro Hern\u00e1ndez Jim\u00e9nez. <\/p>\n","protected":false},"excerpt":{"rendered":"

La C\u00e1tedra de Investigaci\u00f3n Hospital de Molina de la UCAM ha presentado \u2013 en el marco de la VI Jornada Regional de Enfermedades Raras, celebrada hoy viernes 21 de febrero – los avances realizados en los estudios que est\u00e1 desarrollando sobre \u201cTermograf\u00eda en el diagn\u00f3stico de Enfermedades Raras. Avances en la investigaci\u00f3n del aparato locomotor … Leer m\u00e1s<\/a><\/p>\n","protected":false},"author":3,"featured_media":1747,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_uag_custom_page_level_css":"","_mi_skip_tracking":false,"footnotes":""},"categories":[7],"tags":[270,40,32,8,44,208,209,249,24,14,15],"class_list":["post-1729","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-hemeroteca","tag-asistencia","tag-catedra-de-investigacion-hospital-de-molina-ucam","tag-enfermedades-raras","tag-hospital-de-molina","tag-investigacion","tag-molina-de-segura","tag-murcia","tag-promocion-y-divulgacion-de-la-sallud","tag-rsc","tag-salud","tag-sanidad"],"yoast_head":"\nVI Jornada Regional de Enfermedades Raras - Hospital de Molina<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/riberasalud.com\/hospital-de-molina\/21-de-febrero-vi-jornada-regional-de-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"VI Jornada Regional de Enfermedades Raras - Hospital de Molina\" \/>\n<meta property=\"og:description\" content=\"La C\u00e1tedra de Investigaci\u00f3n Hospital de Molina de la UCAM ha presentado \u2013 en el marco de la VI Jornada Regional de Enfermedades Raras, celebrada hoy viernes 21 de febrero – los avances realizados en los estudios que est\u00e1 desarrollando sobre \u201cTermograf\u00eda en el diagn\u00f3stico de Enfermedades Raras. 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